The Beast
I have a lot that I want to talk about but The Beast is currently dominating our domestic scene. Mira is really struggling. It began a few weeks ago, around the time they switched her to eating lunch with the mainstream kindergarten class, and has rolled down hill from there mowing every single one of us down.
It started with complaints of stomach aches, back pains and her telling us “my body feels like something is wrong!” Given her predisposition towards obsessing on the unpleasant, we figured that it was fall out from Levi’s illness and hospital trip, but it raged on. Soon she was stepping off the afternoon bus so jacked up on her tiptoes that she had the appearance of a ballerina up on pointe. Friendly greetings were replaced by beastly snarls, her speech began sinking back into repetitive phrases, and there was much flapping of the hands. Crying became a full time sport and I caught her biting her nails- something she rarely does. ENOUGH! Nothing we were doing was diffusing the situation and the rest of us were rolling headlong down that hill into bad-mood-ville.
Friday I went in to make adjustments to her IEP and had the opportunity to speak with her teacher about how things are going. Amazingly, while falling apart at home, Mira is simultaneously opening up in her mainstream class. Last week she actually started speaking in class without prodding- a definite sign of comfort- and she nearly had a melt down in her mainstream class- another huge sign of feeling relaxed. But even with these positive growth steps, she’s regressing as soon as she is at home in her safest zone so the autism teacher and I brain stormed about what exactly is going on.
We came to several conclusions and are going to work through the list hoping that one will be the solution to our problem. First we are adding an afternoon snack. When she switched from eating lunch in her autism classroom to going into mainstream lunch, her meal time was bumped up an hour. This leaves her going over 4 hours with anything to eat and considering her metabolism, 4 hours can seem like 3 days to her. If the problem persists, we will try cutting down the number of days she is going to regular lunch to 1-3 days instead of all 5. It IS extremely noisy and overwhelming in the cafeteria. Not being able to eat in peace and being overly stimulated for 30 minutes a day then being expected to learn after that may just be too much. If the issues still persist we will take mainstream lunch completely off of the table and instead opt to send her to her regular classroom’s snack time and allow her to eat lunch in her autism classroom.
I was just starting to feel accomplished and hopeful that we could start working past this bump when Friday afternoon happened. On the school bus home, Mira witnessed a pretty nasty traffic accident. A car plowed into a motorcyclist who was thrown form him bike onto the pavement- he was not wearing a helmet. Mira saw every bit of what happened and came home totally pale and shaking. Her greeting to me was “Something HORRIBLE happened on the bus today mama. We go home and go in my room for some privacy so I can tell you about it please”
She did her level best expressing to met what had happened. There were some parts where words completely failed her and she could only jerkily gesture while making weird noises- it was entirely too intense for her to articulate. Near the end of her tale, she broke into tears begging me to reassure her that no one would hit her Papaw, Uncle, or Aunt when they ride their motorcycle and to tell them to wear their helmets so “their brains don’t burst.”
Poor kid. I really wish she had not seen that.
Friday night, everything proved to be simply too much. At bed time Mira had a full blown panic attack. It took 2 hours to get her calm and to sleep. It was very hard to see her like that. I know every single sensation she felt while it raged on. I know how she felt off kilter, her hearing was wrong and her breath felt caught in her chest. I know how her head swam, her body shook and her stomach knotted… Anxiety is one hell of a nasty beast. I hope we can rein it in before it rears it’s ugly head again.










February 25th, 2008 at 1:50 pm
It so totally is, I hope you can nip it right in the bud.
February 25th, 2008 at 2:08 pm
My heart broke for Mira when I read this. To think of what she saw on Friday with that accident. Poor thing. I pray she is able to get those images out of her head quickly! And I am so sorry to hear she is having a hard time. Good thing she has a great momma that is aware of her and what she is going through. I hope you all are able to continue to assess that situation and find wisdom in deciding how best to move forward.
February 25th, 2008 at 3:48 pm
Oh how awful for Mira, for anyone, to have to see that. I hope she bounces through this quickly. Poor kiddo.
February 25th, 2008 at 4:00 pm
Oh my goodness, how horrible! I hope she feels like her old self soon.
February 25th, 2008 at 4:48 pm
Oh my goodness. I cannot imagine having to watch your child go through that. Poor her and poor you! I know how horrible panic attacks can be and in my self-absorbed brain, it never occurred to me that a child could have one. Thank goodness she has you for a mom!
February 25th, 2008 at 5:41 pm
Poor dolly girl. This falls under the Can’t-Make-it-Better heading, and that sucks.
As for her school/lunch/home happenings, maybe there is a certain level of stress involved in doing so well at school, and once she gets home, she sort of needs to decompress? Just a thought.
February 25th, 2008 at 7:46 pm
Anxiety attacks are the worst … and I’m an adult. I can’t imagine what it is like for a child. Sending good thoughts for you and your daughter your way!
February 25th, 2008 at 7:53 pm
I will say an extra prayer for the little punkin tonight… its hard enough to process life without roadblocks…..
She is lucky to have you for a mommy.. 
February 25th, 2008 at 9:53 pm
That sounds horrible (the accident, I mean). I’m sorry to hear that she is having a difficult time at home, but it sounds like you’ve got a good plan with the teacher to isolate what is exactly causing her difficulty. And it must be somewhat rewarding to know that she’s opening up in class.
February 26th, 2008 at 11:25 am
That is so awful! I wish they hadn’t made it legal to ride without a helmet, and I shudder to think about her having to witness that. I think I would have a meltdown, too. I hope the best for you all, especially Mira to be able to handle this traumatic experience.
(As a side note, I am amazed that she was able to request a private moment with you, both her strength in not losing it immediately, and I am proud of the respect you are instilling in your sweet kids.)
February 26th, 2008 at 2:04 pm
Poor sweet girl, the accident was something she should not have had to witness.
I agree with ~A’s last paragraph. Your children are very lucky to have you as a Mom.
Mira sounds as if she has a great support system in you and the school. She is fortunate that way.
February 26th, 2008 at 3:00 pm
Poor thing … I am sending the bestest thoughts and warmest wishes for Miss M. She will pull through…
February 27th, 2008 at 12:23 am
that was hard to read! I cant imagine seeing it. Since Dustin died everytime we see a bike Andrianna turns her head.These things are hard on children and hard on the parents when they see their children struggling.
I love you hun and i am so sorry that you and lil miss has been having it rough.
big hugs